Actually, it isn't that funny. Makes the Bank Holiday weekend a bit more of a trial doing anything, especially looking after the boy when you're knackered already. But Saturday is my main care day.
Big coughs from the boy when I deflate his trachy cuff. Do suctioning as normal but secretions come up bloody. Certainly makes me pay attention. Next few suctions are blood-stained. But thereafter nothing although the boy is quieter and hoarser than normal for the rest of the day.
Eventually, we go out to the shops - to get cake for me he says. But once in the road he pulls a fast one and hares off towards auntie's. I grab him back and he sulks when I say no. Takes a while but he eventually relents and we go shopping.
He has a quiet afternoon but we have a lovely late afternoon trip to the park. He has a great time doing synchronised swinging with Mummy and then playing ball with a little girl. He was very uncertain at first since other kids are a rarity but then really got into it.
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