The start of the year found us twenty months into the journey. The boy was just three years old. He has had three major operations on a tumour in his brain. He has had two different courses of chemotherapy and six weeks of radiotherapy. He has a trachy and a G tube.
The boy was recovering from the two operations at the end of 2006 and starting his third course of chemo. He has right-sided facial paralysis, no swallow and is very wobbly on his feet (the tumour has afftected his balance).
The boy had three cycles of chemo (three weeks on, one week off) until the end of March. He then had a brain scan. This showed that the operations had not been able to remove all the tumour as we had hoped.
The month of May finds us waiting for a second opinion about what options for treatment, if any, are open to him.